Friday, May 18, 2012
#Cancer : #SkyNews Reporter Ellie Jeffery Has Lost Her Battle With Cancer Leaving Behind Her A Legacy That Will Live On - A Diary Of Her Own Battle With This Dreadful Disease.
http://themurdochempireanditsnestofvipers.blogspot.com.es/2012/05/skynews-reporter-ellie-jeffery-has-lost.html
http://writtenoff.net/
Ellies final blog entry...
For the moment I’m wrapped in a safety blanket of routine and because this chemo is a fairly easy one I’m able to go about my life pretty normally, something I am very grateful for. The Gemcitabine and Carboplatin are administered intravenously at the same time and for the next few days I’ll sleep like a sloth but the sickness is kept under control by the drugs and the next two weeks are mine. I’m supposed to have a second dose of just Gemcitabine a week after the first infusion but both times my platelets have been too low so it has been missed.
The red mark on my chest is changing but the lump in my breast seems to be the same size so I am at a loss as to whether this stuff is working. Women who’ve had the treatment have told me that it is very effective and maybe it’s too early for me to call but the huge fear that it’s not working tugs at my safety blanket daily.
The wedding is drawing closer, now less than eight weeks away! I always felt I would make this date, despite what my previous doctors told me, but I can’t escape the fear of ‘what ifs.’ The diagnosis of brain mets and the two stays in hospital early in the year really rammed home how fragile my situation is. There aren’t many options left when it comes to chemo and I need to be in good shape if a trial were to come up again.
Sometimes it doesn’t feel real; how could all of this have happened to me? How did I come to be in such an unlucky situation? I don’t feel bitterness towards others, for what they have, but I can’t help but look around in restaurants and on the Tube and see healthy people with their whole lives ahead of them. I can honestly say I wouldn’t want anyone else’s life but I do envy their health.
On our way back from a house viewing the other day I had to tell Tom that something had been nagging at me whilst we noseyed around other people’s homes. I was scared that we would find a new place, move in and then if I died he would be stuck in a three-bedroom house on his own. He reminded me, and I know he’s right, that we can’t live our lives like that. If we’d believed the stats we wouldn’t be having a wedding in two months time; if you let the cancer take over completely then you’re letting it win before you die.
I never contemplated death before my cancer diagnosis. I don’t think anyone truly expects to die. It’s a universal truth that we’ll all pop our clogs but it’s in the future so there’s no need to think about it and we’re all so busy living our lives there’s no time for it anyway. But when you’re told you have months not years, when lumps and bumps of cancer are popping up all over your body, when the extent of your ambitions is to get out of the flat to meet a friend for lunch, you can’t help but ponder what a world without you in it would be like.
I’m not sure anyone is ready to die, certainly not in their twenties. Even my 89-year-old neighbour who lives alone and has no family says, “I’m not ready to go yet!” I’m torn between hoping for what many medical professionals will tell you is the impossible and accepting that I might not see my 30th birthday......R.I.P. Ellie
http://writtenoff.net/
http://writtenoff.net/
Ellies final blog entry...
For the moment I’m wrapped in a safety blanket of routine and because this chemo is a fairly easy one I’m able to go about my life pretty normally, something I am very grateful for. The Gemcitabine and Carboplatin are administered intravenously at the same time and for the next few days I’ll sleep like a sloth but the sickness is kept under control by the drugs and the next two weeks are mine. I’m supposed to have a second dose of just Gemcitabine a week after the first infusion but both times my platelets have been too low so it has been missed.
The red mark on my chest is changing but the lump in my breast seems to be the same size so I am at a loss as to whether this stuff is working. Women who’ve had the treatment have told me that it is very effective and maybe it’s too early for me to call but the huge fear that it’s not working tugs at my safety blanket daily.
The wedding is drawing closer, now less than eight weeks away! I always felt I would make this date, despite what my previous doctors told me, but I can’t escape the fear of ‘what ifs.’ The diagnosis of brain mets and the two stays in hospital early in the year really rammed home how fragile my situation is. There aren’t many options left when it comes to chemo and I need to be in good shape if a trial were to come up again.
Sometimes it doesn’t feel real; how could all of this have happened to me? How did I come to be in such an unlucky situation? I don’t feel bitterness towards others, for what they have, but I can’t help but look around in restaurants and on the Tube and see healthy people with their whole lives ahead of them. I can honestly say I wouldn’t want anyone else’s life but I do envy their health.
On our way back from a house viewing the other day I had to tell Tom that something had been nagging at me whilst we noseyed around other people’s homes. I was scared that we would find a new place, move in and then if I died he would be stuck in a three-bedroom house on his own. He reminded me, and I know he’s right, that we can’t live our lives like that. If we’d believed the stats we wouldn’t be having a wedding in two months time; if you let the cancer take over completely then you’re letting it win before you die.
I never contemplated death before my cancer diagnosis. I don’t think anyone truly expects to die. It’s a universal truth that we’ll all pop our clogs but it’s in the future so there’s no need to think about it and we’re all so busy living our lives there’s no time for it anyway. But when you’re told you have months not years, when lumps and bumps of cancer are popping up all over your body, when the extent of your ambitions is to get out of the flat to meet a friend for lunch, you can’t help but ponder what a world without you in it would be like.
I’m not sure anyone is ready to die, certainly not in their twenties. Even my 89-year-old neighbour who lives alone and has no family says, “I’m not ready to go yet!” I’m torn between hoping for what many medical professionals will tell you is the impossible and accepting that I might not see my 30th birthday......R.I.P. Ellie
http://writtenoff.net/
Saturday, May 12, 2012
#Boston : #Alzheimer's Research Fraud Case Set For Trial.
BOSTON (Reuters) - Two Harvard teaching hospitals and a prominent Alzheimer's disease researcher accused of using falsified data to obtain a government research grant are set to stand trial after a federal appeals court said this week that a lower court erred when it dismissed the case.
The lawsuit accuses Marilyn Albert, a former professor of psychiatry at Harvard Medical School, and Massachusetts General Hospital (MGH), where she was conducting research, of submitting a grant application based on manipulated data....read more
http://www.chicagotribune.com/news/sns-rt-us-science-fraudbre8491n5-20120510,0,2693773.story
The lawsuit accuses Marilyn Albert, a former professor of psychiatry at Harvard Medical School, and Massachusetts General Hospital (MGH), where she was conducting research, of submitting a grant application based on manipulated data....read more
http://www.chicagotribune.com/news/sns-rt-us-science-fraudbre8491n5-20120510,0,2693773.story
#Crohns And The NHS.
John Ingamells blogs about his battle with Crohns and his deep concern for the now compromised NHS. John explains....
A slight tangent today, this blog has been attempt to look at the implications of getting crohns, living a life with the illness, and the realities of living that life.
Today, it struck me that, though i have mentioned the dedication of the doctors, nurses and staff who have and are caring for me and my welfare, i have been remiss in identifying the role they play and the NHS in their care for people like me.
This is against a backdrop where the NHS as we know it is seriously being compromised. This will have significant implications for patients with chronic illness and their wellbeing.
Firstly, the NHS is not perfect, mistakes are made and on occasions some people do not get the care the NHS is noted for....read more http://jingles21.blogspot.com.es/2012/05/crohns-and-nhs.html?spref=tw
A slight tangent today, this blog has been attempt to look at the implications of getting crohns, living a life with the illness, and the realities of living that life.
Today, it struck me that, though i have mentioned the dedication of the doctors, nurses and staff who have and are caring for me and my welfare, i have been remiss in identifying the role they play and the NHS in their care for people like me.
This is against a backdrop where the NHS as we know it is seriously being compromised. This will have significant implications for patients with chronic illness and their wellbeing.
Firstly, the NHS is not perfect, mistakes are made and on occasions some people do not get the care the NHS is noted for....read more http://jingles21.blogspot.com.es/2012/05/crohns-and-nhs.html?spref=tw
#Virgin Care Take Over The NHS.
by Dr Éoin Clarke (PhD)
Virgin Care's 5 main strategies for taking control of our NHS
1. Infiltration. Andrew Lansley has placed the NHS Future Forum in charge of redesigning the NHS Constitution. You may remember that Gordon Brown's government passed an NHS Constitution Act as a 60th birthday present to the NHS to guarantee its survival and ensure a basic right to a good standard of care for every citizen. Lansley wants to change the Constitution and he has contracted the NHS Future Forum to do it. It may concern you to know that Virgin Care's Commercial Director is on that forum & will now have a responsibility for re-designing our NHS Constitution (see here).... article in full at Dr.Clarke's blog.
Thursday, May 10, 2012
#Alzheimer :Peter Russell Tasered By Police - An Inhumane Story.
Ordeal: Diane and Pete Russell are pictured together at a pub in Epsworth, North Lincolnshire. Two months after the incident, Mr Russell is still receiving psychiatric treatment in hospital and his wife remains traumatised
http://smileyculturelies.blogspot.com.es/2012/05/humberside-police-alzheimer-outrage-as.html
Friday, May 4, 2012
Lying GP Renjith Nair : Baby sent home to die with paracetamol: GP 'failed to examine baby with heart condition then lied to inquest', GMC hears
GP Renjith Nair, 36, was shown Calum Smith by his mother and told he had breathing problems and was cold and sweating yet he did not even get out of his chair to look at him, it was said.
Wanting answers: Lianne Sabin and Mark Smith outside the General Medical Council in Manchester
He then checked the computer in his consultation room and prescribed him with paracetomol - even though hospital doctors had earlier issued advice to the parents saying the baby should not be administered the drug.
Calum returned home after his visit to Dr Nair but was taken later that day to hospital, where he died early the next day. A post-mortem found he died of myocarditis, an inflammation of the heart muscle.
When an inquest was held into the youngster’s death, it was claimed Nair lied on oath and misled the coroner by falsely claiming he had examined the child.
Today Nair, from Preston, Lancashire, appeared at the General Medical Council facing misconduct charges over the death of the baby and his treatment of another patient.
Calum Smith died from an inflammation of the heart muscle
At the age of three days he developed a scab across his nose and at the age of six days he started making “grunting noises” when he was breathing.
He was admitted to Ward 8 of the Royal Preston Hospital but blood tests came back normal and there was no sign of infection.
He stayed in hospital for four days but his temperature fluctuated and was given antibiotics. A midwife came to visit and expressed concerns about the boy’s breathing but he was discharged from hospital and sent home.
On February 23, the health visitor visited Calum at home and was so concerned about the boy’s legs being “floppy” he was seen again by the hospital the next day. Yet the baby was then sent home with the reassurance of the doctor that he was perfectly well.
Two days later the midwife was still concerned about Calum’s breathing and rang the neo natal unit at hospital and left a message asking if they would take the youngster back.
During the evening at home, Calum developed a cold sweat and did not take feed for 15 hours so the following morning his parents took him to see Dr Nair at the Docklands Medical Centre in Ashton, Preston.
Lianne told the hearing: 'Mark held Calum in his arms, we went in and sat down and I spoke to Dr Nair, explained to him that he had been in the hospital the day before and that he had been in and out of hospital, that we had seen Dr Lee, and had been discharged.
'We were in because of his breathing and that since last night he had not been breathing properly and was cold but was sweating.
'I explained that we had been given a prescription for antibiotics. He had Calum’s records up on the computer so I can recall that he knew about it, but I did clearly state that had been in hospital regarding his breathing.
'He sat in his chair, he did not carry out an examination. He said Calum would have been cold and sweaty because of the antibiotics and he would not be feeding because of the thrush he had and told us to give him paracetemol. But the hospital had said not to give paracetemol at all.
'I said the symptoms had worsened overnight. My nanna had said that if babies stopped feeding there was something wrong. It ended with me asking for re-assurance that he would be alright because I explained about the feeding and he said he would be.
'He was not right, he did not look right but I wanted to believe a doctor. The consultation lasted ten minutes tops. Not once did he get out of his chair, Calum wasn’t touched he was still in the arms of Mark with his coat on.
'I asked him to re-assure me and he re-assured me that he would be fine. He sat at his desk, he did not move out of his chair at any time during the consultation. Calum was not touched during the consultation. Dr Nair never examined him.'
Calum’s condition worsened and he and was taken back to hospital where he died on February 27.
Lianne added: 'A a few weeks after Calum had died we were all very angry. Mark took it upon himself to question the doctor, I went with him. We wanted to question why he had not examined him and the doctor said ‘I did examine him’.
'I did not want Mark to go but he was very angry that he had not checked our son when he should have. We knew ourselves there should have been an examination.'
The panel heard that when they got to the surgery, Mark walked past the front desk and into Nair’s room.
Lianne said: 'Mark said ‘why did you not check him’ or something along those lines. I told Mark to calm down and the doctor said ‘I did examine him’ to which Mark said ‘I will see you in court’. We wanted to go about it the right way.'
An inquest in September 2009 recorded a narrative verdict but police were called in after Callum’s parents complained that the GP had lied by saying he had carried out an examination of the baby.
The couple were invited to a reconciliation meeting with the doctor and hospital trust officials the following December and they decided to tape it.
The recording is expected to be played at the GMC hearing
Lianne said: 'I just saw it as an opportunity to meet with the doctor face-to-face to get the truth.
'I didn’t realise it was just kept in that room. We decided to record the meeting ourselves because in the inquest the doctor had lied so we wanted to get it so that people knew what had happened to our son. We were sick of people thinking things which were not true.'
They put the tape recorder in Mark’s pocket and a transcript was prepared for the couple for the meeting.
Lianne added: 'We put all our concerns to him, the main ones like why did he not check Calum, why did he enter false information into the computer and why did he lie at the inquest.
'They then went into a separate room with Dr Nair. They returned and said that Dr Nair agreed with everything we’d said, however he couldn’t recall everything. I do not know what I understood that to mean.'
Counsel for the GMC Mr Russell Davies said: 'If the factual basis of the GMC case is proved on the balance of probability, the conduct of Dr Nair was very seriously below that expected of a medical practitioner.'
'Dr Nair did write to the coroner who conducted the inquest and stated that he examined baby Calum. The GMC case is that that was was a lie.'
Read more: http://www.dailymail.co.uk/health/article-2138389/Sent-home-die-paracetamol-Family-doctor-failed-examine-boy-heart-condition-told-parents-paracetamol.html#ixzz1tu2EYsBs
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